The DEEP project has received research funding from the European Union under the 7th Framework Programme

The Italian Multiregional Thalassemia Registry: centers characteristics, services and patients’ population

The Italian Multiregional Thalassemia Registry: centers characteristics, services and patients’ population

febbraio 10, 2016
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Consorzio per Valutazioni Biologiche e Farmacologiche’s research activity in the pharmacological field is much diversified and it is mainly conducted in the context of national and EU level. It is focused on the development and application of innovative methodologies in clinical trials on small populations, the management of interventional, non-interventional, health technology assessment and pharmacoeconomics studies, and disease registries.

In this field, in 2008, CVBF supported the HTA-Thal project “Inter-regional Network for Thalassemia: HTA for the diagnostic and therapeutic intervention for iron overload”,  a public funded project promoted by the Minister of Health aimed at creating a “Multiregional Network of Thalassemia centers’’, including an inventory of services and tools available at each participating center and setting up a Thalassemia Registry (HTA-THAL Registry), with epidemiological and clinical data on the Thalassemia population referring to those centers. The project was co-funded by Fondazione Giambrone, and coordinated by the Region of Basilicata.

About this project, the article “The Italian Multiregional Thalassemia Registry: centers characteristics, services and patients’ population” has been published on Hematology and it is available at: http://www.tandfonline.com/doi/abs/10.1080/10245332.2015.1101971.

The full text can be requested at the following email: info@deepproject.eu

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